Marfan's syndrome

Well....I just made a rather...unnerving? I suppose, discovery.

I have Marfan's syndrome. Basically, its a genetic disorder that affects the connective tissues, and it has variable expression (it affects people in somewhat different ways.) So, while my sister with it needs surgery to correct her caved-in chest, I merely only "suffer" from being abnormally tall and skinny, which most people would consider a blessing. "zomg you're so sexy, like a model!!" (I find it annoying having to stoop down to do everything...I feel like Gandalf living in a Hobbit's world.) I also have some cardiovascular issues, causing me random and (previously) unexplainable chest pains and fatigue.

So, guess what? Now I have to question whether Archaia is just a mental manifestation of subconsciously dealing with the various traits of my disorder. She is an angel whose body is taller and longer than a human's (except she stands at 8 feet, not 6 <!-- s --><img src="{SMILIES_PATH}/icon_razz.gif" alt=":P" title="Razz" /><!-- s -->) and she also has a broken heart, which physically hurts. And she is "jaded of life" which also physically manifests.

>_> Great. So, my entire belief system is crumbled in light of this new discovery. Any thoughts, opinions, support?

Spanky Wrote:>_> Great. So, my entire belief system is crumbled in light of this new discovery. Any thoughts, opinions, support?

You have an alternate theory to look at - that some or all of your concept of kinness may be due to your unconcious desire to deal with symptoms of your (up until now) undiagnosed Marfan's Syndrome.

I fail to see how this is negative. Sure, it could be that "the truth" is that your kinness is all in your mind - but it strikes me that if your goal in exploring that side of you is to find an explanation, then puttingvalue judgments on some explanations over others is entirely contradictory.

Or, alternatively, you could look at it as thickly interrelated. The Unseen affects the Seen (to use some Kemetic terms); the subtle body affects the physical body... and, for that matter, vice-versa--the physical body affects the subtle/energetic body.

Perhaps Marfan's syndrome has something to do with your angelness. Perhaps your angelness has something to do with your Marfan's syndrome. Perhaps you chose this body because it would fit your subtle body more comfortably. Etc.

Just because there is a physical and/or mundane explanation doesn't mean there isn't also a spiritual explanation as well. The two can coexist--and should, in my opinion.

For example - I've taken way too many psychology classes for my own good. I can explain any mystic experience of mine in psychology terms. Does this mean that it's thus all in my head and not real? No. It simply means that there is a psychological counterpart, that my mind and perceptions and thought process affect my interpretation of the experience. There is a mundane explanation for everything, and there is a mystic explanation for everything, and I generally belief some combination of the two.

Well Spanky, from what I know of Archaia... well... I wouldn't toss it out entirely. Then again, I've always been one to emphasize considering mundane explanations whenever possible.

I know I have recently begun to consider the possibility of Kreyas being a split personality that was created (rather than discovered) at the moment of my car accident almost 5 years ago. Of course, that doesn't explain a crap ton of coincidences that even I cannot ignore - but it's a theory.

Oh heyyyy, that's what my doctor tried to tell me I had once upon a few years ago. I should really stop being a chicken and follow up on his theory before my heart up and goes blooey :/

It could be possible, I suppose, that the idea of a backstory could be created to explain away what was going on in the physical realm. Then again, Meirya could also be right... what was in the soul manifest in the body. Strange and zany things can happen in that way. Better yet... it could all be totally unrelated. Any which way, I wouldn't let your spiritual belief crumble just yet. Sit with the ideas and examine them as things move along.

On a quasi-related note, ever since I moved down here to Houston - I'm *very* much more in touch with my true self. I think it has a lot to do with being free to be myself and living in an area that (at least locally) is very much on the same wavelength as I am politically, socially etc. I feel like I'm finally home here in Houston. Heck, even my health has improved since I've been down here, better than it's been in over 6 months, long before the stress of the move.

*another theory* Maybe it's not so much being kin or not but rather how many barriers there are in your true self making itself known to your human self. The more you are like your true self, the fewer the barriers there are... well as long as you don't go insane and the true self abandons you to save its sanity.

Its easy to misiterpret what the condtion of your 'soul' and what you precive. I have marfan's snydrome too along with a host of other birth defects and to those who can put the puzzle togther it all means something. Just remember all this is coming from inside yourself, if its all wrong then its all wrong you're stll who you are. Everyone has some false belief some small delusion. NO ONE knows the whole truth.

Stag Wrote:Its easy to misiterpret what the condtion of your 'soul' and what you precive. I have marfan's snydrome too along with a host of other birth defects and to those who can put the puzzle togther it all means something. Just remember all this is coming from inside yourself, if its all wrong then its all wrong you're stll who you are. Everyone has some false belief some small delusion. NO ONE knows the whole truth.

Hi Stag, nice to meet you! Please post an intro in the appropriate section and tell us a bit more about yourself, thanks.

Kreyas Wrote:On a quasi-related note, ever since I moved down here to Houston - I'm *very* much more in touch with my true self. I think it has a lot to do with being free to be myself and living in an area that (at least locally) is very much on the same wavelength as I am politically, socially etc. I feel like I'm finally home here in Houston. Heck, even my health has improved since I've been down here, better than it's been in over 6 months, long before the stress of the move.

*another theory* Maybe it's not so much being kin or not but rather how many barriers there are in your true self making itself known to your human self. The more you are like your true self, the fewer the barriers there are... well as long as you don't go insane and the true self abandons you to save its sanity.

My only problem with Downtown is that it's closed on Sundays, basically. But I love Westheimer. I mean the whole frickin length of it. XDD
(Where is yoo at, by the way? We need to hang.)

I'm going with this approach: you didn't have a name for your disorder before now, right? So, randomly speaking, has this ever popped up before? Have you ever thought that perhaps Archaia was a manifestation of your physical oddities before you had a name for the disorder?

If so, then perhaps she is. Look at around what time you awakened to her, how it occurred, etc. Did you ever have to "fill in gaps" for anything in Archaia's history? Did you ever have to reason things out? Example, "so, if Bob tells me he's not married and he's lonely, well, that must mean he wants me as a girlfriend!!" That kinda stuff? Look at everything, and, ultimately, it might turn out that you were wrong about Archaia.

I'm still gonna say no big deal, you're young(like me) and you've got years ahead of you to work your beliefs out. It's not like you're on your deathbed at 87 and had a "everything you knew was completely wrong" moment. Because that would suck.

Of course, if you never thought about that before hand, if you never doubted her existence until now, I don't see why this would make a difference. You were tall, skinny, and had a sunken chest before you knew it was called "Marfan's syndrome" and you knew that not everyone else had the same traits as you before that, too. Why would having a name for it now mean anything?

Above all, I like that you're doubting yourself. While self-doubt's usually uncomfortable and disconcerting, it always leads to enlightenment and figuring stuff out, which is, for better or worse, good. XD

simim23 Wrote:

Kreyas Wrote:On a quasi-related note, ever since I moved down here to Houston - I'm *very* much more in touch with my true self. I think it has a lot to do with being free to be myself and living in an area that (at least locally) is very much on the same wavelength as I am politically, socially etc. I feel like I'm finally home here in Houston. Heck, even my health has improved since I've been down here, better than it's been in over 6 months, long before the stress of the move.

*another theory* Maybe it's not so much being kin or not but rather how many barriers there are in your true self making itself known to your human self. The more you are like your true self, the fewer the barriers there are... well as long as you don't go insane and the true self abandons you to save its sanity.

My only problem with Downtown is that it's closed on Sundays, basically. But I love Westheimer. I mean the whole frickin length of it. XDD
(Where is yoo at, by the way? We need to hang.)

I'm going with this approach: you didn't have a name for your disorder before now, right? So, randomly speaking, has this ever popped up before? Have you ever thought that perhaps Archaia was a manifestation of your physical oddities before you had a name for the disorder?

If so, then perhaps she is. Look at around what time you awakened to her, how it occurred, etc. Did you ever have to "fill in gaps" for anything in Archaia's history? Did you ever have to reason things out? Example, "so, if Bob tells me he's not married and he's lonely, well, that must mean he wants me as a girlfriend!!" That kinda stuff? Look at everything, and, ultimately, it might turn out that you were wrong about Archaia.

I'm still gonna say no big deal, you're young(like me) and you've got years ahead of you to work your beliefs out. It's not like you're on your deathbed at 87 and had a "everything you knew was completely wrong" moment. Because that would suck.

Of course, if you never thought about that before hand, if you never doubted her existence until now, I don't see why this would make a difference. You were tall, skinny, and had a sunken chest before you knew it was called "Marfan's syndrome" and you knew that not everyone else had the same traits as you before that, too. Why would having a name for it now mean anything?

Above all, I like that you're doubting yourself. While self-doubt's usually uncomfortable and disconcerting, it always leads to enlightenment and figuring stuff out, which is, for better or worse, good. XD

Westheimer seems more awesome the more of it I explore.

I'm within walking distance to the Galleria Mall... well if you don't mind a decently long walk <!-- s --><img src="{SMILIES_PATH}/icon_e_biggrin.gif" alt=":D" title="Very Happy" /><!-- s -->.